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Getting run down Options
Louisa
#1 Posted : Tuesday, April 08, 2014 4:38:30 PM Quote
Rank: Advanced Member


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Joined: 2/7/2013
Posts: 71
Location: Suffolk.
I feel so worn down and it is making me feel really low. I sometimes feel shocked when I remember I am only forty one.

The pain grinds me down really, really badly over the Winter. I am finally emerging from a nasty flare and I need to try to get going again, but everything feels so daunting this time. I am very overweight now from a combination of being static, medication, and comfort eating. I don't work and I feel useless. I am isolated and can't afford to move as I'm not working. My house has descended into chaos while I was out of action and I am using all my energy trying to get it sorted out. I need to start trying to walk again as I do every Spring, and I just feel like crying at the thought of the endless hours of building back up.

I get so tired, and I feel like I am a blight on everyone's life. I don't think people believe how hard I find everything when I am flaring. I try really hard to do everything I can when I am well. I used to work long hours in a demanding career and found that so much easier than this. I miss working a lot.

I don't think I am especially pathetic about things, I am just worn down. I don't even feel like a person anymore sometimes, just a collection of needs and symptoms. I think that maybe because of my personality everyone just assumes I will be ok, but I am really not.

Sorry for whining I just wanted to to vent somewhere. The plan is to build my mobility back up, try to lose weight, and find a way forward. I'm going to try to learn to drive later in the year which may help with a few factors.
Paul Barrett
#2 Posted : Tuesday, April 08, 2014 5:06:04 PM Quote
Rank: Advanced Member


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Joined: 4/24/2013
Posts: 703
Location: Hexham
Hi Louisa

Rant away as much as you like - that's what we are here for. Smile

When you have had a demanding job and then stop working it can feel like going off the edge of a cliff and can seriously undermine your confidence in yourself, and make you depressed. And when it comes to depression, pain can have an impact too. I felt exactly the same and it took me a while to admit it. Then I went along to the GP who prescribed some anti-depressants and arranged some CBT sessions for me. The CBT really helped me to de-link pain from mood. Maybe that is something you could consider? Go see your GP - it can't hurt and he / she will help you cope.

And Spring is here, sort of, so yes, get out for some walks if the pain will let you. I have just been for a walk on a National Trust property nearby. OK it turned into a hobble rather than a walk, but just to feel the sun my face lifted my spirits.BigGrin BigGrin

Take care and keep posting to let us know how you are getting on
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
gogs
#3 Posted : Tuesday, April 08, 2014 5:28:44 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 10/20/2012
Posts: 304
Location: Cheshire
You poor girl, I had a lump in my throat when I was reading your comments.

What you describe is the overwhelming grind of having RA, the absolute despair that it can take us to.
You perfectly describe your experience of loss - loss of employment, loss of health, loss of energy, loss of interest, of liveliness, of
friendships, of standards we once took for granted. Where you are is in a state of bereavement for everything that was - we mournSad
Treat yourself as a person experiencing bereavement, Google it, read about it, anything that will give you insight into how to start looking after yourself.

Do other chronic health sufferers feel like this? - I don't really know but like you I have always been energised, full of go, planning ahead etc. RA has taken me into
that dark place and brought me to the point of despair. Please be assured that the people you find on this forum will nurture and support you, they will look out for your
blogs and will respond wholeheartedly. They will never tire of you, I know that from experience and you will find that out for yourself.

It's good to hear you do have a plan though - building back your mobility, losing weight, taking an interest in yourself again. Speak with your GP or Practice nurse, see
what they have to offer, it's always helpful to have a partnership in your plans. Ask your doctor about exercise on prescription, it's available and might be
just what you need, or go to your local leisure centre and find out what's on offer. A little activity will increase those endorphin's and in doing so you will start to feel more energised.

Please keep posting - we will keep reading and replying.

GogsLove
jewelsh
#4 Posted : Wednesday, April 09, 2014 4:05:10 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 9/15/2013
Posts: 125
Hi Louisa
Sorry to hear you are feeling so low at the moment. RA is such a tough disease to deal with and it's horrible when it leaves you feeling the way you feel right now. Gogs and Paul have made some good points and given some good advice but it really is just a matter of taking one step at a time. It's good to see that you have a plan but don't be too hard on yourself if it doesn't all work out as soon as you would like it to. It takes a long time to pick yourself up from the position you are in at the moment.

Do you have a good friend you can talk to? If you can be totally honest with someone about how you feel maybe they would support you in your plans for the future. Meanwhile keep on posting here--we are all here to support you.

Sending a gentle hug & wishing you well

Julie x

Angiecha
#5 Posted : Thursday, April 10, 2014 1:01:06 PM Quote
Rank: Advanced Member


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Joined: 9/5/2010
Posts: 185
Location: Lowestoft, Suffolk
Hi Louisa

I echo all of the above, keep trying to move forward but don't expect too much of yourself. Every little helps as the advert says and I add that every little bit of progress is a major success.

Angie
Be yourself - everyone else is taken. XX
Rebecca D
#6 Posted : Friday, April 11, 2014 7:41:24 PM Quote
Rank: Advanced Member

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Joined: 12/4/2009
Posts: 242
Hi Louisa

I relate to your post so much. I am in that dark place at the moment and just "worn out" describes exactly how I am feeling too. Not just physically but mentally as well.

I have had counselling over the years to stop me sinking to the bottom which has really helped. You could ask your doctor for a referral for cognitive behaviour therapy. It won't take your pain away but will help you to manage your thoughts in a more positive way. CBT focuses on what you can do rather than what you can't. Please don't be afraid to ask for help, I always look at it as a sign of strength. If you can start building on your walking very slowly that will help you mentally too.

Sending you support and hope you can find a way forward.
Best wishes
Rebecca
lisamcb
#7 Posted : Sunday, April 13, 2014 6:57:47 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2013
Posts: 144
Location: Dumfries
Louisa

I too echo so many of your comments and those of others. It doesn't just eat away at us physically but mentally too! I haven't been on for a wee while now as I am trying to work through things in my own head. I started CBT last week and think it will help me in some ways but it's early days. I too am 41 and think to myself at times is this it and all I've got to look forward to but then try and find some chinks of light so I totally empathise with all of your points.

Please keep posting and let us know how you are - its a god damn awful thing but we are all here for each other.

Lisa
Maria_R
#8 Posted : Sunday, April 13, 2014 7:40:25 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/4/2009
Posts: 856
Dear Louisa

No need to apologise for whining- as others have said that's what we're here for and it's good to have people who understand.

You could be describing me- seems very similar to my current situation ( although I'm 56!) I was fine (as fine as you can be with RA) until last November then everything seemed to go downhill. Like you, I was active, enjoyed a full time job teaching- demanding but I loved it and coped for several years despite having RA. I gave up a year ago; for reasons other than RA but I'm sure that I wouldn't be able to work now anyway. I used to spend a lot of time in London, at concerts, theatre and used to love going to a rock gig. Sadly not any more. I'm also a 'people person' and miss having lots of people around- even if it was pesky kids!!!I do get out occasionally but it takes a lot of planning and I usually pay for it big time. I went to Ikea yesterday and really enjoyed it!!! Just shows what a saddo I've become! That's how My house has never been so untidy- I'd be an ideal candidate for one of those hoarder programmes on TV BigGrin I have a wonderful husband who does what he can but as he's now the only breadwinner and has a demanding job I can't expect him to do everything at home as well.

I also tend to comfort eat but I also find it hard to cook so healthy nutritious meals are a bit few and far between.

Boy, do I miss my old life!

Remember though, you're still the same lovely person underneath!

It sounds like you have an idea of what you need to do and are heading in the right direction. As others have said, it's a good idea to talk to your GP/ nurse, to get support. My GP is lovely and always tells me to come and see her if I feel I need to.

Wishing you all the best.

Maria x
Maria_R
#9 Posted : Sunday, April 13, 2014 7:41:32 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/4/2009
Posts: 856
Dear Louisa

No need to apologise for whining- as others have said that's what we're here for and it's good to have people who understand.

You could be describing me- seems very similar to my current situation ( although I'm 56!) I was fine (as fine as you can be with RA) until last November then everything seemed to go downhill. Like you, I was active, enjoyed a full time job teaching- demanding but I loved it and coped for several years despite having RA. I gave up a year ago; for reasons other than RA but I'm sure that I wouldn't be able to work now anyway. I used to spend a lot of time in London, at concerts, theatre and used to love going to a rock gig. Sadly not any more. I'm also a 'people person' and miss having lots of people around- even if it was pesky kids!!!I do get out occasionally but it takes a lot of planning and I usually pay for it big time. I went to Ikea yesterday and really enjoyed it!!! Just shows what a saddo I've become! My house has never been so untidy- I'd be an ideal candidate for one of those hoarder programmes on TV BigGrin I have a wonderful husband who does what he can but as he's now the only breadwinner and has a demanding job I can't expect him to do everything at home as well.

I also tend to comfort eat but I also find it hard to cook so healthy nutritious meals are a bit few and far between.

Boy, do I miss my old life!

Remember though, you're still the same lovely person underneath!

It sounds like you have an idea of what you need to do and are heading in the right direction. As others have said, it's a good idea to talk to your GP/ nurse, to get support. My GP is lovely and always tells me to come and see her if I feel I need to.

Wishing you all the best.

Maria x
Dorothy-W
#10 Posted : Monday, April 14, 2014 6:17:04 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 9/13/2010
Posts: 786
Location: east anglia
sending cuddles to all, must be something in the water these days,i am off my stride as well,dorothy
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